Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism

Shin Ying Chu, Hyeran Park, Jaehoon Lee, Khadijah Kamil binti Shaharuddin, Chun Hong Gan

Research output: Contribution to journalArticlepeer-review

Abstract

Background: This study explored the relationship between self-perceived stigmatization (affiliate stigma), stress and quality of life among parents of children with autism spectrum disorder (ASD). Method: Participants (N = 110) filled-in the Affiliate Stigma Scale, the Caregiver Burden Inventory and the CarerQOL scale. Results: Parents reported low scores on stigma and fair levels of stress and quality of life, indicating that parents do not feel stigmatized by affiliation with a child with ASD nor are they stressed from affiliate stigma. After controlling for demographic factors, both the relationships of affiliate stigma with stress and with quality of life were weak, indicating that stigma may have little to no effect on stress and quality of life. Conclusion: Cultural and religious beliefs may play a part in the acceptance of a child's condition, resulting in less impact of stigma on the parents.

Original languageEnglish
Pages (from-to)485-494
Number of pages10
JournalChild: Care, Health and Development
Volume46
Issue number4
DOIs
StatePublished - Jul 1 2020

Keywords

  • autism spectrum disorder
  • parents
  • quality of life
  • stigma
  • stress

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