NDAR: A Model Federal System for Secondary Analysis in Developmental Disabilities Research

S. I. Novikova, D. M. Richman, K. Supekar, L. Barnard-Brak, D. Hall

Research output: Chapter in Book/Report/Conference proceedingChapter

9 Scopus citations

Abstract

The National Database for Autism Research (NDAR) is a human-subject data repository on tens of thousands of research participants. Approved researchers have access to an unprecedented volume of item-level clinical, genomic, and imaging data. Data are shared quickly using both a common data standard and innovative tools for experiment definition, which provide the level of detail needed for efficient use of the repository. As described, early adopters have used it to conduct secondary data analysis. Now, with an ever-increasing volume of research data being made available, and new methods for data query, data download, and computation in place, this initiative is becoming vital to those interested in scientific discovery in autism or is being used as a model by other research communities.

Original languageEnglish
Title of host publicationInternational Review of Research in Developmental Disabilities
PublisherAcademic Press Inc.
Pages123-153
Number of pages31
DOIs
StatePublished - 2013

Publication series

NameInternational Review of Research in Developmental Disabilities
Volume45
ISSN (Print)2211-6095

Keywords

  • Autism
  • Data respository
  • Database
  • Developmental disabilities
  • Secondary analysis

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    Novikova, S. I., Richman, D. M., Supekar, K., Barnard-Brak, L., & Hall, D. (2013). NDAR: A Model Federal System for Secondary Analysis in Developmental Disabilities Research. In International Review of Research in Developmental Disabilities (pp. 123-153). (International Review of Research in Developmental Disabilities; Vol. 45). Academic Press Inc.. https://doi.org/10.1016/B978-0-12-407760-7.00003-7